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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • American Thyroid Association Patient Event This Saturday (Oct. 21) in Victoria, BC!

    Oct. 16, 2017, 12:32 p.m.

    Hi all - If you are in the Victoria, BC area, the American Thyroid Association will be hosting a patient...

  • Lid Retraction Surgery

    Oct. 15, 2017, 10:33 a.m.

    Wow. That helps a lot. Let me take in what you said. I may be back to clarify something. I also welcome...

  • Lid Retraction Surgery

    Oct. 14, 2017, 5:23 p.m.

    I have had one lid done twice and the other three times. Lids are extremely delicate and the muscles are...

  • Lid Retraction Surgery

    Oct. 14, 2017, 3:58 p.m.

    Hi. This site was very helpful when I had my thyroid out about a year ago. I am now back with a question. My...

  • Question regarding Endo visits since TT

    Oct. 11, 2017, 7:45 p.m.

    LOL! I'm quite sure my endo will never forget that I've had a TT. My case was quite memorable due to the size...

  • Question regarding Endo visits since TT

    Oct. 8, 2017, 1:58 p.m.

    My endo was a bit clueless sometimes. Once she was feeling my neck and admitted she forgot I had had a TT! I...

  • Question regarding Endo visits since TT

    Oct. 8, 2017, 12:21 p.m.

    Sue's last question got me thinking of a question of my own. For any of you who have had a...

  • Stored thyroid tissue after TT?

    Oct. 6, 2017, 9:54 p.m.

    Ellen_B Hi all, I agree it is a difficult task– finding out the how's and why's one levels are just...

  • Stored thyroid tissue after TT?

    Oct. 6, 2017, 12:06 p.m.

    Hi all, I agree it is a difficult task– finding out the how's and why's one levels are just all over...

  • Stored thyroid tissue after TT?

    Oct. 5, 2017, 9:53 a.m.

    Wow, that's really interesting about it “possibly growing back”… didn't know that. But it's...

  • Stored thyroid tissue after TT?

    Oct. 5, 2017, 2:04 a.m.

    The last time I saw my endo, she checked my neck even though I've had a thyroidectomy. She told me she will...

  • Joint/Muscle Pain - How common?

    Sept. 30, 2017, 7:51 p.m.

    Just posting here, in case any subscribers might like to read my post under “Share Your Success...

  • On ATD two years-plus?

    Sept. 30, 2017, 7:44 p.m.

    Hi Everyone, Just checking back in on this thread, to let you know that my ATD journey has taken me to a...

  • Share your Success Story!

    Sept. 30, 2017, 7:38 p.m.

    Hello Everyone, It hasn't been easy, and my journey surely hasn't been short, but I too have wrestled this...

  • Stored thyroid tissue after TT?

    Sept. 30, 2017, 10:59 a.m.

    Requirements do change, things like weight gain/loss, estrogen replacement, steroids, maybe even gut bacteria...

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