did the doctor mention the other ATD to consider her taking? I am curious, was the doctor checking her liver labs when she was on this drug? It is definitely what should be done along withe the thyroid labs when first beginning an ATD. Was it the endocrinologist who saw her when she was sick, or another doc?
Anyway, I am very glad that this was discovered. Her WBC will most likely recover pretty fast now that she is off the drug.
There is ANOTHER ATD, called propylthiouracil, or PTU for short. That is the ATD I took when I was first diagnosed. Did he mention putting her on that drug? However, her WBC should recover first before going on that drug. So maybe the best you and she can hope for, is to tough it out (with increasing hyper symptoms.) and have the rest of her recover. I am glad the RAI is very soon. The sooner, the better, that is for sure!
There is a ton of information from patients on this site about their experience with RAI. I cannot remember which facilitator wrote a very nice piece on what to expect. Unfortunately, the RAI does not have immediate effects, but it does work. I think Ski and Bobbi both had RAI. And there have been very recent posts about it.
It is nice to hear some good news from you, albeit, mixed. Because Graves' has altered your life and the life of your family in a terrible way. I feel very optimistic that this too will pass, but I think we will be hearing from you many more times. Is your wife interested in joining the site?
TED 2008-present. OD for pressure on optic nerve 02/02/10
Eye muscle surgery 09/23/10 Upper eyelid surgery 02/01/11
Lower eyelids with grafts from palate, 10/5, 10/25/11
Graves dx/thyroidectomy 1959-Synthroid from 1980