@Sherry - I'm not qualified to comment on anyone's levels; this would be a discussion to have with your endo. Also, he/she might be able to provide some guidance as to whether an appointment with an ophthalmologist might be helpful. In general, mild symptoms of Thyroid Eye Disease can include dryness, swelling, excessive tearing, and a gritty sensation in the eyes. More serious issues can include a “bulging” of the eyes (proptosis) and double vision. In severe cases, patients can end up with compression of the optic nerve, which requires emergency surgery to correct. Difficulty in seeing colors can be a sign of optic nerve compression – for example, something that you *know* is red starts to look more orange or brown.
@rdial - Thanks for sharing your story. I'm sorry to hear that you have had such a negative experience. (I edited your post to remove the individual doctor's name, as this is a public forum). Do you feel your current doc is working with you to get you some relief – and to give you your life back? If not, a second opinion might be helpful. Referral sites for endocrinologists are available at www.aace.com
. On the AACE site, be sure and select the specialty “thyroid dysfunction.” The Foundation has also just launched a physician registry of doctors who have told us they have particular expertise in Graves’. To access the registry, go to the home page at www.gdatf.org
and click on “physician registry” in the box on the top right-hand side of the screen. Because we are just getting started, we might not yet have a lot of listings in your part of the country.