Thanks for the responses, & will keep in touch with progress and yes, snelsen, understand entirely that the process is a bit different for everyone.
From what I have seen and read, average remission from Graves using ATD's is 4-5 years, so my partner is in that category, some achieve positive results in 1-2 years, and some in 8-10 years & there are others, whom for whatever reason do not gain positive results from using ATD's.
I tend to hold a slightly different view to many others, in that I believe that all the thyroid manifestations of Hypo, Hyper & Hashis, along with the eye disease and shin problems are all caused by the same autoimmune condition and merely present in a different mix of symptoms in different individuals. Unless the underlying autoimmune condition is addressed, then the disease will continue manifest in different ways.
What I have said to my partner & others is that once you get graves, or any other autoimmune disease, then it is yours for life, even if you achieve remission, it will always be there as a part of you, and until you actually embrace the fact, you can not truly move forward. Not to say that everyone will have a full remission, or that my partner will not have a relapse, but we will cross that bridge when we get there.
My partner sometimes gets a bit frustrated with the medical system, but from what I have seen it is not the system that is at fault, it is the population, they are the ones that the system is tailored to. Here in Australia most people go to the doctor and want a quick fix, the young pimple faced doctor says you need to change some things in your life, diet, attitude, activity etc. & the patients response is can't you just give me some pills to fix it? Two or three responses like this and the doctor gives up and just pulls out the pad, presribes half a dozen medications, then goes to the free lunch with the drug reps, and drinks a bottle of whiskey & smokes a pack of cigarettes at night for penance.
If all patients said NO, I don't want a quick fix, I want a permanent fix & I am willing to contribute fully in this partnership so that I can regain my health as much as possible, then the system would change.
I know this doesn't help those currently dealing with an inadequate system & I can't offer any more than our own experience, and that is we dedicated a good 5 years to this process so far, yes the rest of our life continued, but we both changed many things in our life, and also tackled a lot of personal demons. It's not until you actually go through the process of actually changing yourself internally that you truly understand what that means, and for everyone it is different, but your ego will fight you every step of the way.
Anyway, probably getting a bit philosophical here, I do hope someone can gleam some good from what I write.
I am not a Registered Medical Professional nor am I a Formal Researcher of any description, therefore everything that I say and write is purely my own opinion that is based on my own personal experience and information that I have read, henceforth anything I say or write cannot be construed as advice in any shape or form.
Every individual needs to do their own research so that they can make fully informed decisions about their own future and take full responsibility for the decisions they make.
My partner is the GD patient, I am just her researcher and advocate.
PTU treatment for Graves 7+ years ongoing, Supported by Low Allergenic Paleo Diet, Supplements, Yoga, Meditation, Exercise and Lifestyle changes.
Tests in Jan, March, June, Sept and Dec 2012, normal range for FT3, FT4 and TSH and receptor antibodies only marginally above normal in March, well in range in Dec - Scaling down PTU dose and looking forward to a remission attempt in the near future.
Edited Harpy (April 18, 2012 04:19:02)