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#1 June 28, 2012 14:55:16

Carito71
Registered: 2012-06-25
Posts: 319
Profile  

Hello ... I'm new

Kimberly,
That is good news. I will read about it. But you are right, I need to get well again first. The last thing I would want is to pass down health problems to an innocent baby.

Thanks for letting me know. It gives me hope.
Caro


~ Fellow GD patient diagnosed June 2012 with a non-existent TSH, elevated fT3 and fT4, and a TSI of 4.5. On Methimazole 30mg/day for the first 8 weeks. On Methimazole 10mg/day for the next 6 weeks. On Methimazole 5mg/day for a week and a half. On Methimazole 5mg every 4 days for a month. On Methimazole 2.5mg/day starting Nov 15. Current labs show a normal fT4, a normal TSH, and a TSI of 3.2. Diet: Gluten and yeast free. Love to read and learn. Very interested in the immune part of GD ~

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#2 June 28, 2012 17:30:59

adenure
Registered: 2012-03-22
Posts: 444
Profile  

Hello ... I'm new

Hi,

Yes, my TSI was 234 I think? I'm not sure what that means exactly, but I guess it was considered high.

Yes, I was diagnosed with Graves with bloodwork. But, before my surgery, I had an uptake scan to completely rule out postpartum thyroiditis (which it did).

Don't give up on having a baby; it might have to wait awhile, but never say never. I often wonder if Graves was starting to make its way into my life before I was even pregnant with my 4th son. I had 2 early miscarriages before I conceived my youngest (which I never had before). I think Graves can cause miscarriage. My 4th “stuck” because I took progesterone shots twice a week for the 1st trimester.

Alexis


Alexis

Homeschooling mom to 4 wonderful boys!
Diagnosed with Graves Disease after my 4th baby- March 2012
Started on 5 mg. of methimazole daily for 7 weeks
Euthyroid at the end of those 7 weeks, but had to stop methimazole as liver enzymes were 8 times normal range.
Total Thyroidectomy- 6/15/12
Started Synthroid (brand name) 100 mcg. 2nd day after surgery for 6 weeks (TSH: 6.35 & free T4 in upper range and T3 just under mid- range).
Upped Synthroid to 112 mcg. 7/27/12
Euthyroid as of 8/10/12 on 112 mcg. Synthroid (TSH .79 and free T4 in upper range).

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#3 June 28, 2012 20:54:53

Carito71
Registered: 2012-06-25
Posts: 319
Profile  

Hello ... I'm new

Hi Alexis.

My TSI is 237 … not much different from you. My Dr. hasn't mentioned Graves yet but high TSI, from what I read, means Graves. I don't know when he is planning on telling me.

My ultrasound finally came in. It says “Diffuse Goiter”.

My coworkers were telling me the same thing as you They said “you got to look at the positive side of this”. I was so confused when they said that b/c I haven't thought there is a positive side at all. They explained that maybe after being treated I could be more successful at having a baby.

It is probable that you had symptoms already. I think I read the same. It caused infertility and problems with pregnancy. I'm so sorry about your two little angels. I often have thought if I miscarried in the past b/c I have had times were I have been very sick after thinking that maybe I was pregnant but still not detectible. I'm so glad you last baby “stuck”

I guess there is a positive side to all this.

Good night.
I'll post about my ultrasound later on.

Caro


~ Fellow GD patient diagnosed June 2012 with a non-existent TSH, elevated fT3 and fT4, and a TSI of 4.5. On Methimazole 30mg/day for the first 8 weeks. On Methimazole 10mg/day for the next 6 weeks. On Methimazole 5mg/day for a week and a half. On Methimazole 5mg every 4 days for a month. On Methimazole 2.5mg/day starting Nov 15. Current labs show a normal fT4, a normal TSH, and a TSI of 3.2. Diet: Gluten and yeast free. Love to read and learn. Very interested in the immune part of GD ~

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#4 June 29, 2012 01:16:40

Robboford
From: North West Sydney, Australia
Registered: 2012-05-23
Posts: 57
Profile  

Hello ... I'm new

Hi Caro,
My name is Debbie, welcome to the Forum. I have found all the participants on this Forum to be very helpful, understanding and knowledgeable. It certainly helps being able to talk about your concerns with others who have travelled or are still travelling the same path. If you have read any of my posts you will see that my Grave's journey is nearing 10 months. Although my Doctors etc believe that I have had Grave's symptons for a lot of years. You were asking others to give you an idea of length of time before you feel better. We are all individuals and our definitions of feeling well may vary. Some days I feel almost normal, but others I feel terrible. I have still got a number of months before my levels get close to normal to enable complete removal of my Thyroid. I seem to be 1 of the “Gravers” that have had nearly all the syptoms or side effects that fellow sufferers may or may not get. Hang in there - Power is knowledge and patience is powerful - you will get better just accept that evryone is different and have different journeys to travel. Please don't believe everything that you may read or that others may tell you - this Forum has been great in giving me information and advice based on their own experience and it has enabled me pass on some of the same advice and insight that was given to me. I really believe now (it has taken a long while to accept and come to this conclusion) that I have been sent on this journey for a reason, and that one day I will be able to offer the same advice and reassurance to a fellow Graves sufferer.
Cheers, hugs and kisses
Debbie

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#5 July 3, 2012 13:47:32

Carito71
Registered: 2012-06-25
Posts: 319
Profile  

Hello ... I'm new

Hello Debbie,

Thank you!!!! Your post made me cry and I thank you for your response. You are so right, we are all different. I'm so glad this forum exists. I hope you are soon feeling well all of the time. 10 months seems like a long time. I have gone through 1 so far … well it will be one on the 8th since diagnosis. I don't know what has been going on but I feel like I haven't really gotten better but there are 2 things that have changed. I can sleep now and I'm not hot all of the time. Having said that, I feel more tired now. My #s are still the same since I started the Rx so I think it will take some time.

I will look for your posts and learn more about your journey.

Thank you again.
Caro


~ Fellow GD patient diagnosed June 2012 with a non-existent TSH, elevated fT3 and fT4, and a TSI of 4.5. On Methimazole 30mg/day for the first 8 weeks. On Methimazole 10mg/day for the next 6 weeks. On Methimazole 5mg/day for a week and a half. On Methimazole 5mg every 4 days for a month. On Methimazole 2.5mg/day starting Nov 15. Current labs show a normal fT4, a normal TSH, and a TSI of 3.2. Diet: Gluten and yeast free. Love to read and learn. Very interested in the immune part of GD ~

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#6 July 5, 2012 12:03:11

khandl
Registered: 2012-07-05
Posts: 2
Profile  

Hello ... I'm new

Hi Caro,

I have had this for 7 yrs and I know its scary. You are doing the right thing by finding a support system because you will need it. Sometimes, the people close to you cant understand what you are dealing with and I wish I would have found a support group a long time ago. Good luck and stay strong.

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#7 July 10, 2012 12:59:57

Carito71
Registered: 2012-06-25
Posts: 319
Profile  

Hello ... I'm new

khandl,

I just now read your message. Thank you!!

Caro


~ Fellow GD patient diagnosed June 2012 with a non-existent TSH, elevated fT3 and fT4, and a TSI of 4.5. On Methimazole 30mg/day for the first 8 weeks. On Methimazole 10mg/day for the next 6 weeks. On Methimazole 5mg/day for a week and a half. On Methimazole 5mg every 4 days for a month. On Methimazole 2.5mg/day starting Nov 15. Current labs show a normal fT4, a normal TSH, and a TSI of 3.2. Diet: Gluten and yeast free. Love to read and learn. Very interested in the immune part of GD ~

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