Naisly, do you have a copy of the labs and scan? It is my understanding (though I am not sure, so I am confident someone else will chime in here) that the radiologists, the nuclear med docs, are the ones who determine the dose for the RAI. As I read all your posts again, it does seem that from your view, and also because it is advisable to get treatment (beta blockers as you are taking, plus ATD anti thyroid drugs, and I get the impression you are not taking those???, then move on to RAI. Or, as Kimberly said, and we all feel, that when you call as many shots as you are able regarding treatment plan, the more confident you feel that you are doing something very good for yourself.
As I understand from your posts, the doctors involved in your care are the psychiatrist and your GP. Is there a third? Or did your GP diagnose your Graves'. Are you seeing an internist, too?
IF you are not on ATD's, and you have Graves' and are hyperthyroid, you should be on an ATD as well as a beta blocker.
One suggestion I have, is that the GP call an internist or an endo, fax your labs and scan to them, and ask them to tell your GP a beginning dose. Then, when you have follow up labs, he can send them to one of the docs, and they can advise you about the ATD dose.
Regarding the beta blockers, I believe the GP is very capable of managing that drug. YOur job, and it is important, is to keep a record of your pulse and
BP to report to him.
Does any of this make sense to you?
Regarding your partner, it is very hard for anyone else to begin to understand Graves', especially when we are new, and don't understand it ourselves!
I am sure that you simply want to get back to your normal self (minus the phobias) and the way to do that is to move on with this stuff.
Carito has suggestions about meds for your phobia, and it seems your psychiatrist should be able to help you with this. I suggest you request your psychiatrist, GP, internist if you have one, talk to each other, and/or the endo be consulted by phone, have one of these docs get an earlier appointment Maybe your GP? This possible?
TED 2008-present. OD for pressure on optic nerve 02/02/10
Eye muscle surgery 09/23/10 Upper eyelid surgery 02/01/11
Lower eyelids with grafts from palate, 10/5, 10/25/11
Graves dx/thyroidectomy 1959-Synthroid from 1980