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#1 July 25, 2012 12:33:43

VanIsleGal
From: Victoria, BC
Registered: 2012-04-04
Posts: 66
Profile  

What my surgeon said

Hi Caro!

I think it is the same antibody test! http://labtestsonline.org/understanding/analytes/thyroid-antibodies/tab/test [labtestsonline.org]

They don't use it much here. I think the test is expensive and it takes a couple of weeks to get the results back. For me, it was sent to Vancouver and I live in Victoria, on a big island near Vancouver and Seattle in Canada.

Since they don't advocate for remission here my 3 endos have never given me info about remission. Are they more supportive of remission where you live?

Keep us posted too! Take care of yourself! xoxo

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#2 July 26, 2012 16:03:23

jaqeinquotation
Registered: 2012-05-23
Posts: 116
Profile  

What my surgeon said

Can you explain how you had Graves 3xs…I didn't know this was possible

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#3 July 26, 2012 16:22:40

adenure
Registered: 2012-03-22
Posts: 438
Profile  

What my surgeon said

I think VanIsle Gal means that she had relapses. She went into remission and then relapsed twice (the first bout with hyperthyroidism was probably her Graves diagnosis).

Alexis


Alexis

Homeschooling mom to 4 wonderful boys!
Diagnosed with Graves Disease after my 4th baby- March 2012
Started on 5 mg. of methimazole daily for 7 weeks
Euthyroid at the end of those 7 weeks, but had to stop methimazole as liver enzymes were 8 times normal range.
Total Thyroidectomy- 6/15/12
Started Synthroid (brand name) 100 mcg. 2nd day after surgery for 6 weeks (TSH: 6.35 & free T4 in upper range and T3 just under mid- range).
Upped Synthroid to 112 mcg. 7/27/12
Euthyroid as of 8/10/12 on 112 mcg. Synthroid (TSH .79 and free T4 in upper range).

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#4 July 31, 2012 11:46:31

Carito71
Registered: 2012-06-25
Posts: 319
Profile  

What my surgeon said

VanIsleGal
Hi Caro!

I think it is the same antibody test! http://labtestsonline.org/understanding/analytes/thyroid-antibodies/tab/test [labtestsonline.org]

They don't use it much here. I think the test is expensive and it takes a couple of weeks to get the results back. For me, it was sent to Vancouver and I live in Victoria, on a big island near Vancouver and Seattle in Canada.

Since they don't advocate for remission here my 3 endos have never given me info about remission. Are they more supportive of remission where you live?

Keep us posted too! Take care of yourself! xoxo


So it is the same … thanks for looking that up for me. You live in a such a beautiful place. I visited Seattle a few years back. All around there is beautiful. I don't know how supportive about remission my Dr is going to be b/c I just started the journey but I'll get a better picture when I see him again in 2 weeks. I live in a small town so here were I live there are not many Endo Drs. unfortunately and at least one of the few is not at all into GD (he is into diabetes instead). The one I'm seeing right now does have several GD patients and his nurse just had a TT but she does not have GD.

Caro


~ Fellow GD patient diagnosed June 2012 with a non-existent TSH, elevated fT3 and fT4, and a TSI of 4.5. On Methimazole 30mg/day for the first 8 weeks. On Methimazole 10mg/day for the next 6 weeks. On Methimazole 5mg/day for a week and a half. On Methimazole 5mg every 4 days for a month. On Methimazole 2.5mg/day starting Nov 15. Current labs show a normal fT4, a normal TSH, and a TSI of 3.2. Diet: Gluten and yeast free. Love to read and learn. Very interested in the immune part of GD ~

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#5 July 31, 2012 12:29:08

Darcy43
From: Michigan
Registered: 2012-04-09
Posts: 125
Profile  

What my surgeon said

I am glad I read this post….

Helped tremendously.

Alexis if I could hug you through the board…I would.


Still trying to decided but this is great information.


Vanlsle Gal good luck.

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#6 July 31, 2012 13:18:39

jansm
Registered: 2011-05-13
Posts: 17
Profile  

What my surgeon said

I believe a good surgeon will tell you the negative things, and make sure you understand them. It is to protect both you and them. It is not what we always want to hear, though. I have much more confidence in physicians who are perfectly honest with me, instead of those who try to sugar coat everything or avoid telling you anything.

I had no choice. My thyroid was enlarged, and only continuing to swell. It grew upwards into my throat, and my voice was already altered. My surgeon actually wanted to wait awhile for surgery, until some of my levels and other health issues were more stable. However, my endocrinologist was worried about the rate at which the thyroid was enlarging, and the fact it was also beginning to harden in some areas.

My surgery was longer than many. The worst things I remember were the iodine drops prior to the surgery, and a terrible neck and head ache afterwards. My surgeon, an ENT, told me later that my thyroid was one of the larger and most bizarre he had ever seen. The neck pain and resulting headache were most likely due to the angle at which my head was placed, in order for him to reach and remove all of the thyroid. My scar is a little higher than we had initially hoped. However, three years later, it is not that noticeable and I normally forget all about it. There is no loss of feeling in that area.

I did lose my voice, and was very hoarse for awhile. My surgeon requested more follow-up visits than most of his patients, due to this. My voice returned, pretty much to normal, after 2-3 months. It probably took several more months before I could sing at church, and I really missed not being able to join in with Christmas carols that year. At the time, I owned a retail store and was still able to work and converse with customers in person and over the phone. I also developed a tightness in my throat when swallowing. I got to experience that lovely scope procedure, too. I agree it is not pleasant. More scar tissue formed than was expected post-surgery. My surgeon administered a series of steroid shots to the scar tissue, through my neck. Again, not very pleasant, but they helped tremendously. There is still a little tightness sometimes when I swallow, but in no way prevents me from eating or leading a normal life.

Even with a few setbacks, I am grateful for the better health I now have. I do not regret having surgery at all. Good luck sorting out the pros and cons. I wish you the best in the treatment finally selected.

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#7 July 31, 2012 22:24:21

adenure
Registered: 2012-03-22
Posts: 438
Profile  

What my surgeon said

Cyber hug! I posted on your thread Darcy.

Alexis


Alexis

Homeschooling mom to 4 wonderful boys!
Diagnosed with Graves Disease after my 4th baby- March 2012
Started on 5 mg. of methimazole daily for 7 weeks
Euthyroid at the end of those 7 weeks, but had to stop methimazole as liver enzymes were 8 times normal range.
Total Thyroidectomy- 6/15/12
Started Synthroid (brand name) 100 mcg. 2nd day after surgery for 6 weeks (TSH: 6.35 & free T4 in upper range and T3 just under mid- range).
Upped Synthroid to 112 mcg. 7/27/12
Euthyroid as of 8/10/12 on 112 mcg. Synthroid (TSH .79 and free T4 in upper range).

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#8 Aug. 1, 2012 09:01:05

Kimberly
Online Facilitator
From: Phoenix, AZ
Registered: 2008-10-14
Posts: 2675
Profile  

What my surgeon said

Hi all - Just a quick note that TSI and TRAb are actually different antibody tests with different reference ranges. However, due to the expense of testing, most doc's offices that I know of tend to order one or the other.


Kimberly
GDATF Forum Facilitator

…through nature's inflexible grace, I'm learning to live…
– Dream Theater

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#9 Aug. 1, 2012 09:07:40

Carito71
Registered: 2012-06-25
Posts: 319
Profile  

What my surgeon said

Kimberly
Hi all - Just a quick note that TSI and TRAb are actually different antibody tests with different reference ranges.

Thank you Kimberly. Is TRAb the same as TPOab? TPOab is the one I was thinking might be the same one.

Caro


~ Fellow GD patient diagnosed June 2012 with a non-existent TSH, elevated fT3 and fT4, and a TSI of 4.5. On Methimazole 30mg/day for the first 8 weeks. On Methimazole 10mg/day for the next 6 weeks. On Methimazole 5mg/day for a week and a half. On Methimazole 5mg every 4 days for a month. On Methimazole 2.5mg/day starting Nov 15. Current labs show a normal fT4, a normal TSH, and a TSI of 3.2. Diet: Gluten and yeast free. Love to read and learn. Very interested in the immune part of GD ~

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#10 Aug. 2, 2012 12:39:49

Kimberly
Online Facilitator
From: Phoenix, AZ
Registered: 2008-10-14
Posts: 2675
Profile  

What my surgeon said

Hello - TPOab is a completely different antibody that is more commonly associated with thyroiditis, although many Graves' patients happen to test positive for this antibody as well.


Kimberly
GDATF Forum Facilitator

…through nature's inflexible grace, I'm learning to live…
– Dream Theater

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