I am so sorry to read this, your post was delivered to my email. I read that the antibodies increase after RAI, which probably causes the increase in TED. I had a problem with the idea of being alone, to protect others from radiation exposure, and having a possible life threatening case of thyroid storm. I also had a problem with increasing my cancer risk.
I thought this was interesting: http://www.cbc.ca/news/health/story/2012/09/07/breast-cancer-brca-radiation.html
Women at a hereditary risk of cancer should try to avoid chest, breast x-rays. This can be detected with genetic testing. One chest x-ray is .005 to .020 of absorbed radiation. A typical higher dose RAI is 10 000 rad (absorbed radiation). (I didn't keep this reference as I had no plans of posting on this forum again). The good news is miraculously most people don't get cancer from RAI!
What do you mean mismanaged radiation for your grandma? I don't know what the CBC results mean. Have you looked them up? Interesting the numbers are off? An organ essential for life is being destroyed though. I hope you feel well again soon!
I am managing the disease with heart rate readings, blood tests, seeing the endocrinologist, low iodine diet, and Kundalini yoga and chanting. I am taking 20mg Tapazole as a maintenance dose right now, down from 40mg.
I wonder how long that thyroid dump can last? I thought it would be over by now? So if you talk to the endocrinologist on call you pay for this? I would talk to the on call endocrinologist at the hospital if I was in your situation.
I hope this is your last bad day! Keep us posted & good luck! PS. I talked with Sarah Kramer the other day!