Hold control (command on a Mac) and press the + key as many times as necessary to increase the font size.
Hold control (command on a Mac) and press the - key to reduce the font size. - hide

#1 Aug. 15, 2012 14:02:19

spenanelson
Registered: 2008-11-06
Posts: 33
Profile  

labs - frustrated and stressed

Kimberly,

Thank you for the link and the response. I am still waiting on my Doctor to call me back with next steps. I know that my Endo will take their sweet time to look at the results and get back to be, but at this point I have no idea what they will do to adjust the levels. I am trying not to stress about it. It will happen when it is meant to.

As for my RE he likes them in the lower range. And I trust him more than my Endo at this point.

I have a lot of questions and until they are answered I know that this journey will continue to full of bumps and road blocks.

Offline

#2 Aug. 16, 2012 11:14:48

spenanelson
Registered: 2008-11-06
Posts: 33
Profile  

labs - frustrated and stressed

So my lab uses the range for tsh at .4 -4.5

So I am in “normal range”.

But my RE want it to be in the range of 0.4-2.5. So I'm in normal range for regular management but not for IVF. so my RE is reviewing my numbers to see if he is comfortable with proceeding. But he is on vacation till Monday.

I now have so many questions and I'm hoping that next week I can get answers. I have an appointment with my general to go over all my results. But I'm still wondering if it is better to have a high fT4 over a lower TSH when it comes to pregnancy . this has always been my challenge with my labs since the second RAI. It has rarely been on the low end of the labs.

more than likely I will have to wait another 6 weeks on the IVF.

Thank you for listening and offer such great words of comfort and advice.

Edited spenanelson (Aug. 16, 2012 11:15:53)

Offline

#3 Aug. 16, 2012 11:37:00

Carito71
Registered: 2012-06-25
Posts: 319
Profile  

labs - frustrated and stressed

Hello again.

Yes, 3.3 is within the normal range of 0.4-4.5. I guess your RE wants you more on the high side than the low side of the normal range. Do your Endos agree on the normal range being 0.4-4.5? Or does your RE use a different lab and is not taking into consideration the difference? Just something I personally would like to know if it was me.

I hope your RE is comfortable with proceeding but if not don't feel discouraged. I'm thinking that it will be less stressful and you will have a greater success rate when the #s are where the RE needs them to be. I know how frustrating it can get. I used to get so sad when I was told “not this cycle … we'll try again next cycle”. Hang in there though. I'm glad you are seeing your general Dr. and getting some of your questions answered. If you have to wait 6 more weeks, use the time to relax a little bit so that you are good and ready for next cycle.

Wishing you all the best,
Caro


~ Fellow GD patient diagnosed June 2012 with a non-existent TSH, elevated fT3 and fT4, and a TSI of 4.5. On Methimazole 30mg/day for the first 8 weeks. On Methimazole 10mg/day for the next 6 weeks. On Methimazole 5mg/day for a week and a half. On Methimazole 5mg every 4 days for a month. On Methimazole 2.5mg/day starting Nov 15. Current labs show a normal fT4, a normal TSH, and a TSI of 3.2. Diet: Gluten and yeast free. Love to read and learn. Very interested in the immune part of GD ~

Edited Carito71 (Aug. 16, 2012 11:37:41)

Offline

#4 Aug. 27, 2012 07:56:30

spenanelson
Registered: 2008-11-06
Posts: 33
Profile  

labs - frustrated and stressed

Update…

So last week they ran new labs at 7 weeks post new dosage.

they came backed mixed again! I just got my results 30 min ago.

TSH: 2.1 Range .4-4.5
T4 14.7 Range: 4.4-12.4
T3 26.5 Range: 20-38.5
(forgot to get fT4)

So my TSH is in range for IVF - needed to be .4-2.0, but my T4 is high. Is this bad? will I ever have normal labs again? Could birth control pills cause issues? I have even changed how I take my levoxyl again (4am on an empty stomach with out any other meds).

And for getting pregnant, is the TSH the number to be concerned with or is there still a greater risk for miscarriage with a high T4?

I am hoping to start my shots on Friday and I still waiting on the RE to call with his decision.

Offline

#5 Aug. 27, 2012 10:05:07

Kimberly
Online Facilitator
From: Phoenix, AZ
Registered: 2008-10-14
Posts: 2675
Profile  

labs - frustrated and stressed

Hello - Your RE will need to make the call on whether TSH or T4 is the more important measure.

Certain substances, such as birth control pills, can “bind” thyroid hormone, thus making it unavailable for the body’s use. I've heard of patients who went off of birth control pills and subsequently required adjustments in their dose of medication. This type of change wouldn't show up in a total T4 test, but should be picked up in a Free T4 test.

Hope that you get good news!


Kimberly
GDATF Forum Facilitator

…through nature's inflexible grace, I'm learning to live…
– Dream Theater

Offline

#6 Aug. 27, 2012 11:52:07

spenanelson
Registered: 2008-11-06
Posts: 33
Profile  

labs - frustrated and stressed

I did get the news that I was looking for. Yes T4 can be high on BCP due to the increase in estrogen. And my RE looked at my labs and said that I was cleared for IVF! So I go in on Thursday for sonogram and Estradol test and then I should start my shots on Friday.

I can not believe this day is finally here. I know that it is going to be along journey and I have to hope that my thyroid levels play fair. 10 years of infertility probably due to Graves and its related issues. Even if we are not successful I can at least say that we tried.

Thanks for all the help and support. I do not know what I would do with your the support of this board.

Stephanie

Offline

#7 Aug. 28, 2012 01:54:43

Robboford
From: North West Sydney, Australia
Registered: 2012-05-23
Posts: 52
Profile  

labs - frustrated and stressed

Hi Stephanie,
Wishing you every success on your next “journey”. Sending kind thoughts and a special mention in my prayers for you from Down Under. Stay well and please keep us updated. We will all be cheering you on
Cheers, hugs and kisses
Debbie

Offline

#8 Aug. 28, 2012 08:31:26

spenanelson
Registered: 2008-11-06
Posts: 33
Profile  

labs - frustrated and stressed

Debbie,

Thank you so very much! I will take all the prayers and good wishes I can get. I know that my journey is not unique - especially in this community - but it does not make any less difficult to live.

I am looking forward to sharing all my success here sometime really soon.

I am just happy to be a part of a select groups of very strong people!

Thanks again.

ps: I am officially on the “high” of my journey. I love everyone and every thing. lol!

Offline

#9 Aug. 28, 2012 14:59:02

Carito71
Registered: 2012-06-25
Posts: 319
Profile  

labs - frustrated and stressed

spenanelson
And my RE looked at my labs and said that I was cleared for IVF! So I go in on Thursday for sonogram and Estradol test and then I should start my shots on Friday.

I can not believe this day is finally here.

Congratulations!!!!!!! I'm super exited for you. I wish you all the very best with your shots so that pretty soon you can have good news. Please do keep us posted.

Smiles!!!!!!!
Caro


~ Fellow GD patient diagnosed June 2012 with a non-existent TSH, elevated fT3 and fT4, and a TSI of 4.5. On Methimazole 30mg/day for the first 8 weeks. On Methimazole 10mg/day for the next 6 weeks. On Methimazole 5mg/day for a week and a half. On Methimazole 5mg every 4 days for a month. On Methimazole 2.5mg/day starting Nov 15. Current labs show a normal fT4, a normal TSH, and a TSI of 3.2. Diet: Gluten and yeast free. Love to read and learn. Very interested in the immune part of GD ~

Offline

#10 Aug. 28, 2012 17:24:13

spenanelson
Registered: 2008-11-06
Posts: 33
Profile  

labs - frustrated and stressed

Have to share… Got a call from my endo's nurse that said “ dr. Xyz reviewed your labs and they are normal so no change.”. He reviewed my original numbers and ignored or simply was not given all the other information about the ivf. He is reportedly the best endo in town. The doctors doctor. If miney were no objcet and had no insurance doctor. Went to Yale , interned at the best of the best hospitals. But can't seem to understand that my numbers were not okay for the all my other doctors. The original numbers were not okay for ivf.

It may be time for me to find the second or even third best endo in town.

Well that is all behind me now.

Offline

Board footer

Moderator control

Questions? Problems? Please contact us at info@ngdf.org or 877-643-3123.

GDATF on Facebook

Support the GDATF and become a member today!

© 2013 Graves' Disease & Thyroid Foundation