Hi Kimberly, thanks for your reply. I realized I should probably give more details, I didn't have alot of time earlier.
I was previously diagnosed with central hypothyroidism. My highest TSH was 1.11 and my T4 was below range. So I have been on Nature Throid since then, 2007 or early 2008. So my TSH has been depressed (it didn't have far to go!) and my T4 was usually low in range with T3 near the top of the range. I also have adrenal sufficiency and am on hydrocortisone, 22.5 -25mg/day. I did not have all the formal testing (hindsight) and believe I am secondary, so probably a pituitary problem. I have been doing well.
In June of this year I started feeling hyper. Bloodwork came back with Free T3 over the range and T4 raised just a tenth of a point. So I reduced my dose by 1/2 grain. Three weeks later I feel hyper again, had bloodwork done. TSH still zero, T3 came down to 3.3 and T4 went to 1.71 from .8. I was thinking “HOW??”. I have not been on thyroid meds since last Monday. I did try 1/2 grain last Thursday and it about put me in a crisis.
I have heart palps (luckily not constant), not sleeping well (wake up alot and sometimes stay awake), warm, lump and pressure in throat, sometimes hoarse, sooo tired, loose bowels here and there, sweat more, and my legs feel weak.
By reading here, I am fortunate I am not too bad. I do not like the heart palp thing, makes me feel bad. And I really want some good sleep!
There is a GP here that is treating someone I know for Graves, I will go see him Friday and see if he will help me. I was thinking of trying to find an endo who treats Graves and knows and cares about the pituitary and adrenal stuff. I guess I will talk to him first and go from there. I do live in a small town and the endo I found on internet who states he does pit and adrenal stuff and IS on my insurance is 88miles away. I will play it by ear.
So I am in the early stages of this. Is there any other reason why my T4 would surge with no TSH??
Is a metallic taste in the mouth from this too??