I hope everything goes well Shirley.

Good luck to you.

Thinking of you and wishing you a speedy recovery!
Laurel

Shirley,
I hope the procedure was a success and that you are recovering! I will be looking forward to hearing good news from you soon!
Pam

Hello everyone,
It is post op day day #5 after my upper eyelid surgery. The purpose is to lower the retracted lids, to cover more of my eye. It has not been a smooth post op course. I had a lot of pain, not expected at all with these procedures.
Turns out I had a corneal abrasion on each eye, one much more painful than the other. Took about 3 days to get that resolved, but putting on one contact lens over the abrasion. Apparently there were rough surfaces on the upper eyelid, plus one suture poking my cornea. Super painful. There is a lot of swelling still,despite having head of bed elevated and lots of cool compresses.
I don't know the outcome of this yet, we are hoping that the lower lid will allow at least one of my eyes to stay closed while I sleep. Although Graves' was terrible, I have found TED more life altering that GRaves'. And the lasting effects seem permanent. I would not wish it on anyone.
Shirley

Hi Shirley - Wow, I'm so sorry to hear that the post-op period hasn't gone smoothly. Were the corneal abrasions already there from not being able to close your lids all the way, or was this something that happened during the surgical procedure?

Here's hoping that you can get through these next few days and that you will find that the procedure had a successful outcome. Wishing you all the best.

Corneal abrasions related to surgery. The part of the eyelid that touches the eye is rough, thus causing continual irritation. Of course, this is not a “common occurrence” I continue to have nothing but complications with any procedure I have, not to mention daily living, with TED.
Shirley

Oh, no…sure hope you can get some relief soon. Please keep us posted!

Hi Shirley!

Sorry I've been away while you're going through all this – sounds like you're still battling the pain, I'm so sorry to hear you're going through this.

I'll send healing thoughts your way, I really hope things start to resolve WELL for you!

Hugs,
Ski

Hi Ski, nice to hear from you.
Pain for 8 days, like a suture scratching my cornea. Doc said ( I saw him every day, no it can't be that!“ Went yesterday, said look again, I can't stand eh pain. Doc says, ”hmm, looks like one of the sutures on the muscles of the eyelid came apart." Well, duh. He removed it, threw in a new suture, I reminded him to make a good knot, like he was tying his shoes! Contact over eye to protect abraded cornea-but it does not stay in the the right place, then the contact is a foreign body itself. Whee.
Are you planning to go to San Diego? Is Bobbi?
Shirley

Hello Shirley,

I'm late to your post … but I want to wish you a quick recovery. I know it has been tough so far, with the pain and all but I'm very hopeful that things will start turning around for you soon.

Please keep us posted. Stay strong. I'll come back to see how things are going.

Smiles,
Caro