Gatorgirly, I hear your dilemma.
I have gone through similar 28 months since start of Graves; almost 2 years on Methimazole and then now 4-1/2 months post RAI; not feeling normal.
I do know that my current endocrinologist told me as I ask a million questions, that once my levels are “balanced” post RAI which I had first week of May 2012, that I will move on to my internist to test me for future; I had been tested while on Methimazole and then post RAI every month (since November 2011) and as I just started Synthroid 3-4 weeks ago and I have been not been feeling well thus far;
Yet, once I am “balanced” which my endocrinologist said can take approximately 6 months to 1 year post RAI, I will not get tested as frequently; in fact he does treat patients every 2 months normally post RAI until the become balanced; then the time in between becomes greater yet I do not know if it would be every 3 months or every 6 months; I know someone post RAI for a few years who just got tested once balanced once a year.
I would think though if you request something and insurance covers it, there should be no problem with your request; I mean I know people who ask for specific blood tests or more frequent blood tests and get what they need; yet not everyone; depends on the doctor and situation.
It sounds like your former endocrinologist would be better to work with. I had an endocrinologist I loved and she left after 6 months working with her back in 2011 to go to another state and I believe if she had still been working with me, I'd not be in the boat I am in right now!
When I listen to what you say and about the surgery and being in range yet still not feeling well, I hear many others stories similar yet not just on this forum. I too got lab results too late after going seriously hypothyroid a few weeks post RAI and it was treated as being oh so casual like I should not be concerned.
I do believe in time we can feel “normal” if we are working with the right doctor; we definitely have to have a comfortable patient/doctor relationship; I am finding some people have a much easier time than others post RAI as in my case with thus far some difficulties and I am only getting there slowly from my own research and being my own health care advocate and stressing things to my doctor(s). It has not been easy; I am sorry you are going through this. Plus I am hearing for some even when balanced it does take a while to feel normal so I am still not sure about all this either and I am told post RAI to give it at least a year to see if I start feeling “normal” even with levels that are supposedly in range.
For me, if I could not get the current doctor to work with me with your concerns you mention, it's your health, your life… it may not be a bad idea to consult with or move on to a new endo?… best of luck with all this…beach
Edited beach45 (Sept. 10, 2012 08:38:58)