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#1 Sept. 27, 2012 13:45:26

gymstarpeanut1
Registered: 2012-09-27
Posts: 2
Profile  

In remission?????

My doctor said I have went into remission and my levels are where they are suppose to be,but my heart rate is still very fast( resting is 112),And I mever feel good !!! What should I do ?

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#2 Sept. 27, 2012 14:23:50

Carito71
Registered: 2012-06-25
Posts: 319
Profile  

In remission?????

Hello.

I, personally, would find out how the Dr came to this conclusion and if I did not get the answer that I was looking for, I would get a second opinion (either see a another Endo or ask for my general Dr's help).

I've read here in the forum that TSI, TSH, fT4, fT3, and TPOab tests are needed to help decide if you have actually gone into remission. I might be wrong but definitely TSI, TSH and fT4. Signs and symptoms are also important. It could be that your heart has been affected permanently and therefore the tachycardia and “never feel good” symptoms and now you need to see a cardiologist but you might also want to find out how your Dr is deciding that you have gone into remission.

Wish you the best finding out what is going on. Hopefully someone with more experience can provide more input for you.

Caro


~ Fellow GD patient diagnosed June 2012 with a non-existent TSH, elevated fT3 and fT4, and a TSI of 4.5. On Methimazole 30mg/day for the first 8 weeks. On Methimazole 10mg/day for the next 6 weeks. On Methimazole 5mg/day for a week and a half. On Methimazole 5mg every 4 days for a month. On Methimazole 2.5mg/day starting Nov 15. Current labs show a normal fT4, a normal TSH, and a TSI of 3.2. Diet: Gluten and yeast free. Love to read and learn. Very interested in the immune part of GD ~

Edited Carito71 (Sept. 28, 2012 11:07:53)

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#3 Sept. 27, 2012 15:09:02

Kimberly
Online Facilitator
From: Phoenix, AZ
Registered: 2008-10-14
Posts: 2675
Profile  

In remission?????

Hello - The latest medical guidance recommends testing antibody levels in order to help determine whether hyperthyroidism will recur. (The guidance recommends TRAb testing, but my doc uses TSI).

If your doctor hasn't ordered this testing, it's certainly worth asking. Also, getting a hard copy of your labs would be helpful, especially since your doc is telling you things are “normal”, but you clearly aren't feeling well. The “normal” range is fairly wide, and some patients feel better in a certain spot (top, middle, etc.).

Take care!


Kimberly
GDATF Forum Facilitator

…through nature's inflexible grace, I'm learning to live…
– Dream Theater

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#4 Sept. 27, 2012 18:28:47

gymstarpeanut1
Registered: 2012-09-27
Posts: 2
Profile  

In remission?????

I believe he has only tested me for t,tfree,and tsh

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