I have had 3 years plus experience with TED in Seattle. For a long time, the eye docs would test my vision, change the RX for my glasses, and it never really helped. It was all attributed to glasses. I had dry eyes, wavy vision off and on, and blurry vision now and then and was more sensitive to light.
When my vision began to affect my work, I walked in another eye doc office, to make an appointment. I did not know him. He happened to walk out to the desk, take a look at me, and say, "If you are here to make an appointment, I'd like you to go downstairs for an orbital CT scan. I'm 99% sure you have TED.
So that is what I did.
I was going to several eye docs for different things during TED. One for the double vision, and subsequently a strabismus surgery. One to assess my vision, related to losing vision. He was the neuro ophthalmologist. Good thin, too, for I ended up with optic neuropathy, and had to have an emergent OD in the active phase, to save my vision. And the other doc was the oculofacial surgeon, who did the OD>
I have had a ton of surgeries since then. My TED is pretty severe. I gotten 2nd opinions in Portland and Iowa, along with my Seattle docs.
Glad you are going to an eye doc familiar with TED. That is very important.
Write after the appointment.
TED 2008-present. OD for pressure on optic nerve 02/02/10
Eye muscle surgery 09/23/10 Upper eyelid surgery 02/01/11
Lower eyelids with grafts from palate, 10/5, 10/25/11
Graves dx/thyroidectomy 1959-Synthroid from 1980