I'm several years late utilizing this forum and I'm not sure what I can offer/learn here.
After being diagnosed with Graves, I was on Methimazole for over 18 months without remission or adequate correction. I opted to be treated with the radioactive iodine in May of 2005. I had NO IDEA what I was getting into!
Because of mistreatment and/or misunderstanding, my thyroid levels sank so low within a few months that I was in a complete fog and sleeping 15 hours when I could. Compounding the problem was that I had started a new job at the beginning of July. I'm surprised they didn't fire me I was so out of it. This was a very shameful, traumatic ordeal, feeling like a complete failure and fraud on the job! I also had an elderly mother to attend to.
When I saw the doc at my prescribed appointment - late July?, he was mildly horrified at the low levels. Apparently, I was to have stopped taking the Methimazole, although I distinctly remember him saying to continue taking it after the RI. At this point in my life, like many others, I was just holding on for dear life and concentrating on putting one foot in front of the other. Being a survivor has it's downside. We are less likely to pick up the phone and make a fuss and often, do not have the funds to be running to the doctor for every little problem.
In retrospect, I figure I was diagnosed about 10 years late, suffered terribly from the delay of treatment, then the “treatment” itself, but thanks to those very same survivor habits that hindered me getting SEEN when things were falling apart, I am still here at almost 56, feeling pretty good after years of trying to retrieve 1/2 a brain back and some relative calm and vitality. I just had those giant fibroids removed that refused to shrink after menopause (endocrine connection you think?), and I'm hoping to enjoy my life a little before I croak. My eyes will just have to stay a little buggy, they're not bad, but It's not in the cards financially to have that procedure.
WHY IS IT SO BLOODY HARD TO DIAGNOSE THIS CONDITION?
Thanks for listening. Janine