To Beach, nice post, and you reflected very nicely the T3 T4 topic.
I have a feeling you know this, but you have been on Synthroid a VERY short period of time. You've barely been on it long enough to have a lab drawn. Getting the right amount is frustrating, and it takes time.
Of course an endo or other doc should listen to how you feel. Having said that, when you are getting the “right” amount of Synthroid, or other thyroid hormone replacement, generally, we feel pretty darn good.
My endo at an academic center, says that there are very few people who actually feel better on the combo. He said that adding T3 to Synthroid, done properly, the T3 must be taken twice a day, to prevent a rush and then a dump. and few patients were willing to do that. This pretty much reflects his thoughts about Armour, for the T3 dose is not divided in time. Having said that, there are people who have done well on Armour, like Gayle.
Gayle, your post is so helpful to folks beginning on this Graves' journey, or those of us who have been on it a long time. With people over 50, there is an added risk of atrial fibrillation (if too much thyroid hormone, or dumps of it) which is where that thinking came from.
In my own experience, my TSH is ALWAYS suppressed. Way back in my chart it says, “iatrogenic hyperthyroidism” which means it was caused by the medical profession. In other words, I was taking too much thyroid hormone for too long. On the other hand, my new endo and I have tried to slowly taper it over two years, and my TSH did not budge. But I became very hyPO
clinically, and could barely lift my head off the bed, and developed gastroparesis. So now I am on 125mcg. Was on 150mcg for years, and we tried to decrease it, got to 77mcg. No good.
Our bodies, before Graves, did all this thinking for us. Now we have to have docs and ourselves figuring out what to do.
It can be very discouraging. But it all we have.
TED 2008-present. OD for pressure on optic nerve 02/02/10
Eye muscle surgery 09/23/10 Upper eyelid surgery 02/01/11
Lower eyelids with grafts from palate, 10/5, 10/25/11
Graves dx/thyroidectomy 1959-Synthroid from 1980