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#1 Oct. 11, 2012 08:21:02

geostyv
Registered: 2012-08-04
Posts: 13
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Life After RAI--adventures of radioactive man!

Hi All,

Well, today I took the pill. It was a pretty shade of blue and the dosage was 21.6 mCi. The radiological tech was very reassuring and explained everything that I would need to know precaution wise. My wife and I are fortunate enough to have two bedrooms and two full baths so we can stay in the same house together. She is off taking the dog to the boarders for the next few days.

Right now I feel good and am thinking that I will play a lot of golf this week since I have taken off work and golf is one of those things were I can be out in big open spaces alone.


I stared at that little pill for a long while. I'll never know if I would have just gone into remission or not, being subclinical; however, I have a minor heart defect that will require surgery later in life so I figured I would try to get the thyroid thing under control early and not risk heart muscle damage. Still, pulling the trigger is hard. I have found these boards a great source of information and comfort over the last few months. I will share my story here, too, in hopes that it provides some help for someone else.

Stay tuned in for the continuing adventures of Radioactive Man!

geostyv

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#2 Oct. 11, 2012 09:54:29

Kimberly
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From: Phoenix, AZ
Registered: 2008-10-14
Posts: 2711
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Life After RAI--adventures of radioactive man!

Thanks for the update! You might also check out the posts from AZGravesGuy and metalsfr, as they have recently documented their experiences with RAI.

Wishing you all the best!


Kimberly
GDATF Forum Facilitator

…through nature's inflexible grace, I'm learning to live…
– Dream Theater

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#3 Oct. 14, 2012 22:35:55

geostyv
Registered: 2012-08-04
Posts: 13
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Life After RAI--adventures of radioactive man!

Just checking in … it has been three days since my dose of radiation. I really don’t feel any different at all. I haven’t had any neck tenderness or any hyperthyroid symptoms, though I am still taking my beta-blocker.

I played 2.5 rounds of golf by myself. I walked 9 holes twice (2.5 miles each with 10 pound bag). I worked in the yard and then just tried to relax. I feel like myself. In short I am trying to enjoy the time off work because I know that the eventual hypO thyroid crash will come.

I have my dog home now. He was sent away for a few days but now is home – yippie!! I am still making sure to keep him sleeping on his pillow, a good 15 feet away from me. He is an old dog and likes sleeping so it works. My wife’s cat is still at her sister’s house and I hope that maybe he’ll find a new home there. He is a mean cat.

Hoping all is well with everyone!
geostyv

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#4 Oct. 15, 2012 10:23:17

Kimberly
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From: Phoenix, AZ
Registered: 2008-10-14
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Life After RAI--adventures of radioactive man!

Thanks for the update!

LOL, maybe something good will come of this if the mean cat finds a new home. I had a college roommate who had an EVIL cat, and that certainly makes everyday activities challenging! (Like trying to walk down the hall *without* getting a chunk of your calf clawed out…)


Kimberly
GDATF Forum Facilitator

…through nature's inflexible grace, I'm learning to live…
– Dream Theater

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#5 Oct. 18, 2012 06:27:49

geostyv
Registered: 2012-08-04
Posts: 13
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Life After RAI--adventures of radioactive man!

Well, it has been one week (with 15 mins.) since I took the magic pill. My wife's “devil” cat is still out of the house, which is a bonus, but he'll be back soon.

I felt OK on Tuesday. I had my last day off work and I did a lot of work in the yard — digging up plants, planting new plants, and generally getting the yard ready for fall. I worked hard and felt great.

The next day was my first day back to work and I felt lousy. I was fatigued and moody. I sweat through my clothes and was a little “jittery” all day. Nothing that was unmanageable but definitely not as good as I had felt the day before. I definitely feel like I am having a mix of symptoms — some hypER, like the thyroid dump, and some HypO.

I know my Free T4 (at the top of the normal range) was never that high since I was still subclinical so I wonder if that will make me go hypO faster or not. Any ideas?

That's the update … mostly normal but definitely more fatigued than normal.

geostyv

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#6 Oct. 18, 2012 08:43:31

Kimberly
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From: Phoenix, AZ
Registered: 2008-10-14
Posts: 2711
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Life After RAI--adventures of radioactive man!

Thanks for the update! The question about T4 levels would be a good one for your doctor. I do know that the amount of radioactive iodine that the thyroid gland gobbles up following treatment has an impact on the amount/timing of the destruction of thyroid tissue, but I'm sure there are other factors at play as well.

Glad you are still getting a break (for now) from the devil cat! :-D


Kimberly
GDATF Forum Facilitator

…through nature's inflexible grace, I'm learning to live…
– Dream Theater

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#7 Oct. 18, 2012 12:48:06

Bobbi
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From: Miami, FL and Zephyr Cove, NV
Registered: 2008-10-27
Posts: 1325
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Life After RAI--adventures of radioactive man!

Geostyv: About one week after RAI dying thyroid cells release their stored supplies of thyroid hormone into the blood, causing us to be more hyper than normal for a few days. Keep the positive thoughts going. If you are feeling more jittery, fatigue, etc., it means the RAI is “working” to bring you back to health. (We feel fatigued while hyper, too, although you may not have noticed that symptom as much if you were subclinically hyper.)


[b:3sz1pkbe][color=#008000:3sz1pkbe]Bobbi GDF Online Facilitator[/color:3sz1pkbe][/b:3sz1pkbe]

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#8 Oct. 26, 2012 01:22:19

geostyv
Registered: 2012-08-04
Posts: 13
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Life After RAI--adventures of radioactive man!

Hi Everyone,

Well, is has been just over two weeks since I did RAI. I have felt pretty good so far. I have a heart palpitation everyone once in a while and I am still taking my beta blockers, but on the whole I do feel better. Sort of peaceful in a way. There has been a lot of work stress in the last week and my wife has been suffering from peri-orbital cellulitus (sp?) so she has had to be home for a few days and I've had to juggle work to take her to the doctor. Her doc prescribed oxycodone today for pain, she is really hurting. Meanwhile we are in the middle of trying to get some of my mother's property, which is in another state, through closing and sold. The RAI seems to be the least of my worries right now!

I guess if I could say if I feel bad at all it would be that I am a little tired and my knees and hips have been a little achey. Both these things could be stress and the changing seasons or they could be the hypo — who knows?

I am worried about the eventual cliff I will drive off where I will go hypO and not be able to function. There are a lot of people who depend on me being able to do my job and I worry about them. I teach and have a lot of students who paid a lot of tuition and there is no one to cover my subject if I am out for a day or two. I have administrative responsibilities, too. People at work who know have been understanding and maybe I am being dramatic. Still, work is a concern.

The cat is still evil — he has not been understanding.

On the whole feeling good and at peace with my decision.

geostyv

Edited geostyv (Oct. 26, 2012 18:02:17)

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#9 Oct. 26, 2012 04:16:56

Bobbi
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From: Miami, FL and Zephyr Cove, NV
Registered: 2008-10-27
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Life After RAI--adventures of radioactive man!

Hi, Geostyv

The key to not “going over the cliff” into hypo, is to have periodic blood tests at rational intervals. My doctor had me have my first check at 5 weeks and I had “just” gone over the hypo bump (it was not a cliff – I felt fine, and was functioning well). What I experienced with hypo (TSH of no more than 13) was that while I was a bit fatigued at times, I could work through it. I could get out, get a bit active – like taking a short walk or something – and I would feel better. When I was hyper, I was fatigued, and if I tried to do anything, I felt worse. So, what I'm really saying is that you shouldn't borrow troubles you might not experience.

Wishing you a steady progress towards good health,


[b:3sz1pkbe][color=#008000:3sz1pkbe]Bobbi GDF Online Facilitator[/color:3sz1pkbe][/b:3sz1pkbe]

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#10 Oct. 29, 2012 05:59:59

geostyv
Registered: 2012-08-04
Posts: 13
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Life After RAI--adventures of radioactive man!

Bobbie,

Thanks for posting. That is exactly the kind of thing I wanted to know. Even before we scheduled my RAI we set up a post-6 week appointment. The endo said he wanted to get my TSH to 15 (not sure the range or units) so he would know the RAI and really worked. I have a good deal of confidence in him; he is engaged and compassionate. It is good to know that there shouldn't be too much in the way of hypO cliff so long as I follow up with him — which I definitely plan to.

On the hypO front, I did go back to the gym for the first time since I had this done and lifted weights. The exercise felt good and I made a point not to over do it, but my endo said it would be OK. Overall, I feel pretty good!

Thanks for your reply.
Geostyv

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