Over the summer I wrote that I was having some trouble communicating with my doctor and taking the Methimazole. To make a long story short, my doctor insisted it was highly unlikely that any of my symptoms described would be from that although I stopped taking it (stupid, I know and I don't advocate that) perhaps a coincidence, but I felt so much better. From August to last week, October 16th, I have been off it. During this time I had one blood test which revealed my white cell count high and was sent to my family doc for a re-check. It turned out fine. My levels were low enough that I stayed off my pill for the time being but I never followed up with my doctor because I was kind of pissed at her. I then tried seeing a new Endo but it was a disaster and I didn't hang around long enough for the blood test. So I kept my 3-month with my first doctor, emailed her, we decided to have a fresh start and I went to my appointment. She was postitive that my levels were high and I was more then ready for the surgery. I had narrowed it down to surgery rather thank taking the radioactive pill.

I have been dealing with this since last October and I had been really sick back then when it all started. I just got to the point where I had enough and after feeling so badly this summer, I didnt' want to continue the medicine. She emailed me the next day after my appt. with my results and it looks as though somehow I have regulated to the point where she feels that I don't have to have medicine or see the surgeon.

How did this happen? I haven't a clue. I have had a lot of stress in the past few months so I was shocked by the news. I mean a lot of stress too. The only thing that I have done differently this past year was cut down on the gluten. This came from a recommendation from my family doctor, not because I have celiac, but because of my thyroid. I know this isn't proven but after a few weeks of being nearly off all of it, I felt so different that I stuck with it. I do cheat now and then but it is just an eye opener when I do because I feel awful. The reason I cheat is because I love pizza and that can't be replaced!

So that is my story. When I knew I was sick of the battle and was ready to remove my thyroid, this happened. I will carefully be aware in the coming months of how I feel and if at anytime I think that I am heading in that direction again, I will call my doc. But for now, she will see me in three months. Wonder how long this will last….because it usually doesn't from what I have read.

I have learned a lot here and I appreciate being able to have others to relate to……….

My levels:

FT40.65, 1.4, NG/DL 1.360
TSH 0.40, 4.00, UIU/ML 0.04

Suzanne

Our disease is caused by antibody levels which can rise or fall for no well-understood reason. And, while stress does play a role in aggravating our condition at times, stress is pretty much a constant in today's world, and we can still go into and out of remission.

It's great that you can go without the meds right now. I hope you do continue to feel well.

Bobbi
Our disease is caused by antibody levels which can rise or fall for no well-understood reason. And, while stress does play a role in aggravating our condition at times, stress is pretty much a constant in today's world, and we can still go into and out of remission.

It's great that you can go without the meds right now. I hope you do continue to feel well.

I am one who believes that stress plays a role in a person's well-being. I think major stress can break us down. And by know means was my recent stres at the “today's world” level. It was a bit bigger.

I am very surprised at my test results and also realize it isn't written in stone that I will continue to be med free but surprisingly this has happened. There may be no well- understood reason but I will take the break. I was just about ready to give up and if it rears it's ugly head again, I know that I am not willing to go down the same road that I was just on for the past year!