Thanks for the replies.
Well I'll try to give a quick run down on what has been happening.
When I saw my endo Aug.24th (first and only time) he told me what my dose will be 30mg first 4 weeks, then start 15mg there after, and depending on labs at 6 weeks, have my GP adjust my dose. I tried to tell him my GP doesn't know anything about dosing, and the only reason I had the referral to see him (the endo) was because my GP agreed he didn't know enough, so then what, my endo said of course my GP knows. I asked him if I could call his office or what I should do ‘if’ my GP doesn't know, he only laughed and said your GP knows and I don't want to see you for 6 months. He also made me promise I would not change the dosing on my own, I reluctantly agreed.
So, Sept.12th I started the 30mg. I began to feel better, shakes gone, heart felt stronger, most aches gone etc. But then Sept.23 my heart started to do some funky things - not at all like when I was severely hyper. It was happening every 5-10+ beats per minute, sometimes not stop for 5 minutes straight, all day, everyday. From the second I opened my eyes to the second I fell asleep.
It feels like my heart is off beat and jumps making blood rush to my head, causing me to take a deep breath because I feel it in my chest, almost as if I got the wind knocked out of me for that ‘beat’. And I walk around trying very hard to ignore it, but its hard to when I feel so dizzy. Something just wasn't right.
Oct.5 I went in to see my GP and told him about the heart thing, he said not to worry, and ‘sit’ when I felt dizzy. He said he would order a 24hr heart monitor if it would make me feel better, I told him that it might be a good idea. I asked him about my labs from Oct.3, he said I was still hyper because my TSH was still low and to continue following the dosing the endo recommended. (Obviously I was hypo at this time just from my lab work). And no, my GP still thinks that you dose according to TSH levels.
So at this point, knowing I was hypo I had no choice to follow what the edno and my GP said. But all the while my heart got worse, I began so swell up all over, I look like I'm 6months pregnant, my stomach is rock hard, my hands are swollen, my skin feels tight, my goiter is bigger and is bothering me, my eyes lids are swollen actually, most days I don't have upper eye lids. I'm starting to walk around like a zombie again. I suppose the worst is my heart and feeling dizzy all day.
As you can see I had labs done again Oct.25th and this is where I'm at. I will say that finally after 3+ weeks (Oct.29th) I am to go in and get that heart monitor the GP ordered back on Oct.5th.
Just a tad bit more info - Not once since June have I had my blood pressure checked by any of these dr's. And this is why I had such a hard time starting the medication to begin with, because I couldn't find a dr willing (knowing) to do proper dosing, and look where I'm at now
I'm just so very alone.