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Thyroid Eye Disease Breakthrough!

June 30, 2017

If you've been diagnosed with thyroid eye disease, you know that the current options leave much to be desired: wait, wait, wait, wait some more -- and eventually get approved for one or more surgeries to address bulging, swelling, and double vision. (With steroid therapy sometimes used as a temporary stopgap).  However, the successful trial of a brand new drug could prove to be a game-changer for patients living with this disfiguring and frustrating condition ...

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  • Thyroid Eye Disease Breakthrough!

    June 30, 2017

    If you've been diagnosed with thyroid eye disease, you know that the current options leave much to be desired: wait, wait, wait, wait some more -- and eventually get approved for one or more surgeries to address bulging, swelling, and double vision. (With steroid therapy sometimes used as a temporary stopgap).  However, the successful trial of a brand new drug could prove to be a game-changer for patients living with this disfiguring and frustrating condition ...

    Read More

  • Wilmer Eye Institute Thyroid Eye Disease Study

    June 30, 2017

    The Johns Hopkins Wilmer Eye Institute is currently recruiting patients for a new clinical study using celecoxib (Celebrex), a non-steroidal anti-inflammatory drug approved by the Food and Drug Administration (FDA) for the treatment of pain, osteoarthritis, rheumatoid arthritis, and ankylosing spondylitis, as a treatment for active thyroid eye disease (TED).  The study is intended to evaluate the efficacy of COX-2 inhibition in the treatment of active TED and its ability to improve both the acute ...

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  • The Hashtag Initiative (#GreaterThanGraves)

    May 13, 2015

    It’s time to show the world that you are #GreaterThanGraves with our new Hashtag initiative! Sharing your successes via social media will not only help raise awareness of Graves’ disease, but will also provide inspiration and hope to newly diagnosed patients in our Graves’ community! Interested?  For more info, please read this blog post from Greater Than Graves’ organizer Michaela Cui.

    Read More

  • Recent Forum Posts

  • side effects from uptake test

    Jan. 21, 2018, 8:13 p.m.

    I never had any problems after my uptake and scan back in 2011. I was on methimazole for four years and never...

  • marijuana use and thyroid eye disease

    Jan. 20, 2018, 5:33 p.m.

    I vaped MMJ when my eyes flared a few years ago. Arizona is a Medical Marijuana state. My medication was...

  • marijuana use and thyroid eye disease

    Jan. 19, 2018, 9 a.m.

    Hello and welcome - I've not seen any well-designed studies on the issue, so best to err on the side of...

  • marijuana use and thyroid eye disease

    Jan. 18, 2018, 12:58 p.m.

    it is always suggested people stop smoking tobacco if they have thyroid eye disease. but i have never seen...

  • side effects from uptake test

    Jan. 10, 2018, 10:21 a.m.

    Hello and welcome - I would urge you to contact your provider ASAP on the symptoms that you are experiencing....

  • side effects from uptake test

    Jan. 10, 2018, 9:21 a.m.

    HI, I have had graves disease, since Aug.29th, when I ending up at ER for high H.R. I have been taking Beta...

  • Antibodies still HIgh

    Jan. 10, 2018, 4:53 a.m.

    Generally they will not do strabismus surgery if you require a small amount of prism because of the risk of...

  • Antibodies still HIgh

    Jan. 9, 2018, 5:56 p.m.

    Thank you Liz for all your imput. It is reassuring. Dr. prescribed prism for me for driving as well . I have...

  • New diagnosis of graves with heart problems

    Dec. 15, 2017, 8:31 a.m.

    The best advice I can give you is to find the very best specialists you can, even if it means traveling to a...

  • New diagnosis of graves with heart problems

    Dec. 15, 2017, 8:20 a.m.

    Hello and welcome - Great catch on the med that your dermatologist prescribed - I would *definitely* run that...

  • New diagnosis of graves with heart problems

    Dec. 14, 2017, 5:57 p.m.

    Hi I am 47, a mom of three boys, a therapist, and I have SVT (heart rhythm disorder). I usually run and bike...

  • Rough recovery from RAI

    Dec. 7, 2017, 12:02 p.m.

    Thanks…he said no, no, no to Tapazole, so i switched endos! Got my blood drawn today and see the new...

  • Rough recovery from RAI

    Dec. 7, 2017, 7:49 a.m.

    Hello and welcome - hopefully others who have had RAI will chime in. If you are still extremely symptomatic,...

  • Failed Radioactive Iodine Uptake Test

    Dec. 7, 2017, 7:46 a.m.

    Yes, sounds like a second opinion and a fresh set of eyes might be helpful! I've not heard of a normal TSH...

  • Failed Radioactive Iodine Uptake Test

    Dec. 7, 2017, 5:11 a.m.

    Have you considered thyroidectomy? It is a definitive cure for hyperthyroidism and the hypo is easily managed...

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