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Teprotumumab Update

Dec. 13, 2019

On Friday, Dec. 13th, the FDA's Dermatologic and Ophthalmic Drugs Advisory Committee met in Silver Spring, MD to discuss teprotumumab, a potential treatment for active thyroid eye disease.

The committee voted 12-0 Friday in favor of recommending approval of a biologics license application for teprotumumab. This is not the final approval, but is one step in the process. Key takeaways:

* Committee members expressed concern about the small study population (90 patients).
* Side effects were ...

Teprotumumab Update
Dec. 13, 2019
On Friday, Dec. 13th, the FDA's Dermatologic and Ophthalmic Drugs Advisory Committee met in Silver Spring, MD to discuss teprotumumab, a potential treatment for active thyroid eye disease.

The committee voted 12-0 Friday in favor of recommending approval of a biologics license application for teprotumumab. This is not the final approval, but is one step in the process. Key takeaways:

* Committee members expressed concern about the small study population (90 patients).
* Side effects were ...

Read More
Neuropsychiatric Symptoms and Graves'
July 2, 2019
If you enjoyed the GDATF's patient bulletin "What's Wrong With Me? I'm Not Myself Anymore", then you won't want to miss the sequel! "A survey study of neuropsychiatric complaints in patients with Graves’ disease: A reassessment of self-reported symptoms and current practice 20 years later" is now available as an e-manuscript that is free with Kindle Unlimited or $2.99 with Amazon. Many thanks to Dr. James Arruda for conducting this ...

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Shop 'Til You Drop - And Help the GDATF!
Nov. 8, 2019
Your regular online holiday shopping can help the GDATF fund its patient education and support programs! By purchasing through one of the following channels, online retailers will donate a portion of proceeds to the Graves’ Disease & Thyroid Foundation - at no cost to you!

Amazon Smile Program
iGive
eBay

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Recent News
- Teprotumumab Update
  Dec. 5, 2019, 9:14 a.m.
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  Nov. 19, 2019, 4:26 p.m.
- Shop 'Til You Drop - And Help the GDATF!
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- Patient Community Forum in Chicago on Nov. 2nd!
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- Free Patient Event in Denver, CO on October 20th!
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Recent Forum Posts

Hello and thank you

Jan. 19, 2020, 9:35 a.m.

thank you for sharing!!! and congrats!
On ATD two years-plus?

Jan. 17, 2020, 6:32 a.m.

Thanks for the clarification Kimberly.
On ATD two years-plus?

Jan. 16, 2020, 3:49 p.m.

Thanks for checking in! You hear a couple of different definitions of remission. One involves going 12 months...
Hello and thank you

Jan. 15, 2020, 8:43 a.m.

Wonderful news - thanks for the update!
On ATD two years-plus?

Jan. 15, 2020, 7:18 a.m.

hockey_coach My story on Tapazole for 6 years. https://www.gdatf.org/forum/topic/42723/ Thanks for sharing...
On ATD two years-plus?

Jan. 14, 2020, 7:36 p.m.

My story on Tapazole for 6 years. https://www.gdatf.org/forum/topic/42723/
Hello and thank you

Jan. 14, 2020, 7:24 p.m.

I should have been updating this thread over the years. It was this forum that made me aware there is success...
Thyroid problems causing "insect bites"?

Jan. 13, 2020, 9:54 a.m.

Could be a contact, food or even inhalant allergy. If the eruptions skip your trunk (areas not covered by...
Thyroid problems causing "insect bites"?

Jan. 13, 2020, 9:02 a.m.

Wow, that is frustrating! Hopefully, others here will chime in. I've heard of hives with hyperthyroidism or...
Thyroid problems causing "insect bites"?

Jan. 12, 2020, 7:29 p.m.

For the past few weeks I've been finding what seem to be insect bites on my hands, arms, legs, and shoulders....
Diet

Jan. 8, 2020, 2:16 p.m.

Thank you! My endo said I definitely have Graves and has my blood checked every 3 weeks watching my levels. I...
Diet

Jan. 7, 2020, 5 p.m.

Hello and welcome - if you have a definite diagnosis of Graves', hopefully, your doctor has tested your...
Diet

Jan. 7, 2020, 3:12 a.m.

I was diagnosed with GD in August 2019. My entire body hurt, joints, muscles, skin. I shook so bad I needed...
Synthroid to generic -what to expect?

Jan. 3, 2020, 8:29 p.m.

Thank you Kimberly for chiming in. Your advice is always very appreciated. As is your time that you dedicate...
Methimazole side effect - terrible joint pain

Jan. 3, 2020, 6:08 a.m.

https://www.ncbi.nlm.nih.gov/pubmed/31134536 This journal article describes myalgia, arthritis, etc as...

Teprotumumab Update

Teprotumumab Update

Neuropsychiatric Symptoms and Graves'

Shop 'Til You Drop - And Help the GDATF!

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