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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • After Thyroidectomy

    April 20, 2019, 5:17 p.m.

    I had a total thyroidectomy 6 months after Graves diagnosis (5 years ago). The eye disease began after two...

  • After Thyroidectomy

    April 19, 2019, 9:34 a.m.

    Hello and welcome - you will hopefully get some responses here from those who have had a thyroidectomy, but...

  • After Thyroidectomy

    April 17, 2019, 3:33 p.m.

    Hello, I had the right side of my thyroid removed at the beginning of the month and my T3/T4 levels are still...

  • Graves antibodies, TED and levothyroxine

    April 10, 2019, 10:50 a.m.

    Hi. I have no idea how to reduce my high TSI antibodies and neither does my doctor. He said it’s simply proof...

  • Graves' Has Destroyed My Life

    April 2, 2019, 9:05 a.m.

    Liz1967 5 years post thyroidectomy, and two years post last of six eye surgeries on both eyes. Except for...

  • Graves' Has Destroyed My Life

    April 2, 2019, 8 a.m.

    5 years post thyroidectomy, and two years post last of six eye surgeries on both eyes. Except for some...

  • Graves' Has Destroyed My Life

    April 2, 2019, 4:23 a.m.

    Kimberly Hello - Sorry to hear you are going through this. We're fellow patients here, so all I can suggest...

  • Graves' Has Destroyed My Life

    April 2, 2019, 4:18 a.m.

    SueAndHerZoo I'm sure you'll get other responses but since I popped in here just because I haven't in so...

  • Graves' Has Destroyed My Life

    April 1, 2019, 11:15 a.m.

    Hello - Sorry to hear you are going through this. We're fellow patients here, so all I can suggest to you is...

  • Going off methimazole expectations

    April 1, 2019, 11:10 a.m.

    Hello - We don't have a group specifically for friends/family members, but if you would like to reach out to...

  • Graves disease relationship & depression

    April 1, 2019, 11:09 a.m.

    Hello and welcome - I'm sorry to hear that you are going through this, but glad that you found us. The good...

  • Graves' Has Destroyed My Life

    April 1, 2019, 8:58 a.m.

    I'm sure you'll get other responses but since I popped in here just because I haven't in so long, I thought...

  • Graves' Has Destroyed My Life

    April 1, 2019, 6:38 a.m.

    Is my scenario normal? I'd appreciate any comments or help or advice about where to turn. It has really...

  • Going off methimazole expectations

    March 30, 2019, 11:02 p.m.

    Hi, are there any support groups for spouses and family of patients of graves patients.

  • Graves disease relationship & depression

    March 29, 2019, 5:48 p.m.

    I am 69 years old & I was diagnosed by my Endocrinologist with Graves Disease on the 19th March this...

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