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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • Changes Coming to This Forum - Options for Online Support

    July 9, 2021, 8:13 p.m.

    Hi all - The GDATF will be transitioning to a new website soon, and the state of this forum is in a bit of...

  • What do you think of this theory?

    July 6, 2021, 1:41 p.m.

    From the American Thyroid Association regarding their guidelines: “The balance between benefits and...

  • What do you think of this theory?

    July 6, 2021, 1:39 p.m.

    Hello - A reminder that I'm a fellow patient. This decision should ultimately be made between you and your...

  • Post-Tepezza Symptoms

    July 6, 2021, 1:09 p.m.

    Hello - Muscle cramps are listed as a potential side effect for TEPEZZA (TM). Hopefully, you've reported this...

  • What do you think of this theory?

    July 2, 2021, 7:55 p.m.

    Kimberly— on the 6-25 you wrote that ATA labels the evidence for ATD pretreatment before RAI as “Strong...

  • What do you think of this theory?

    July 2, 2021, 5:54 p.m.

    Kimberly– loved your article – ‘Playing on One String - Day to Day Life With Graves'….re famous...

  • Post-Tepezza Symptoms

    July 1, 2021, 11:36 a.m.

    Greetings! First time poster here. I was diagnosed with Hyperthyroidism in 2018 and developed TED by mid...

  • What do you think of this theory?

    June 25, 2021, 11:10 a.m.

    Hello - We already had a user named “Meredith”, so I switched it to “Meredith2021”....

  • What do you think of this theory?

    June 22, 2021, 2:04 p.m.

    I realize total thyroidectomy is expensive for insurance companies vs ATD or RAI, but at least for me, it has...

  • What do you think of this theory?

    June 22, 2021, 1:28 a.m.

    Kimberly. Thanks for changing my sign in, so no confusion with other person. How about changing my user name...

  • What do you think of this theory?

    June 18, 2021, 4:39 p.m.

    (Edited) Hello - Thanks for being flexible on the username to help us avoid confusion with our other admin! I...

  • What do you think of this theory?

    June 17, 2021, 1:57 p.m.

    https://pubmed.ncbi.nlm.nih.gov/31482765/ 2019 study, another perspective on ATD treatment. Note especially...

  • What do you think of this theory?

    June 17, 2021, 12:32 p.m.

    Hi Kimberly—thanks for your reply June 11. Per your advice I’ll update my screen name, ellenb. Do I...

  • What do you think of this theory?

    June 11, 2021, 3:52 p.m.

    Hello and welcome! First, do you mind if we work with you to update your screen name to avoid confusion with...

  • What do you think of this theory?

    June 10, 2021, 6:39 p.m.

    Gianna— Hi, I'm trying to decide on treatment for Graves. Can you tell me— how was your...

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