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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • My mother

    Dec. 13, 2018, 12:18 p.m.

    So sorry to hear that your mom is struggling, but glad that you found us. She is certainly welcome to call or...

  • My mother

    Dec. 12, 2018, 7:17 a.m.

    My mom has been struggling with graves for about 3 years now and I don't know how to help or deal. She views...

  • Double vision after OD - lost full eye rotation

    Nov. 29, 2018, 6:49 p.m.

    I do know that, but thank you! I like his forward thinking when it comes to TED so IMO, you're fortunate to...

  • Double vision after OD - lost full eye rotation

    Nov. 23, 2018, 2:12 p.m.

    As you probably know, Dr Douglas moved from Kellogg in MI to CA. I was lucky he finished all my surgeries...

  • Double vision after OD - lost full eye rotation

    Nov. 23, 2018, 6:59 a.m.

    Liz, Thank you for your detailed reply, I appreciate your time. I was under the impression that - solely...

  • Double vision after OD - lost full eye rotation

    Nov. 18, 2018, 6:50 p.m.

    I had severe Graves ophthalmopathy and have had OD surgery both eyes, strabismus surgery and lids. Double...

  • Double vision after OD - lost full eye rotation

    Nov. 18, 2018, 4:55 p.m.

    First, a bit of history - diagnosed with Grave's in 2000, RAI 13.5 mill. TED which I essentially lived with...

  • Help!

    Nov. 18, 2018, 4:53 p.m.

    I agree with the others: Get copies of your labs (I track mine on a spreadsheet) and find a new doctor. And...

  • Breasts getting larger? Rash?

    Nov. 16, 2018, 6:08 p.m.

    I think I'll mention it to the endocrinologist when I notify her that I've had the tests and give her a...

  • Breasts getting larger? Rash?

    Nov. 16, 2018, 5:39 p.m.

    Hello - I've not heard of the specific issues you are mentioning (although certainly overall weight gain can...

  • Breasts getting larger? Rash?

    Nov. 16, 2018, 4:36 p.m.

    Levothyroxine is a hormone chemically identical to the hormone produced by your thyroid. It is not a drug per...

  • Breasts getting larger? Rash?

    Nov. 16, 2018, 3:16 p.m.

    I've been on levothyroxine about 6 weeks and will be getting my next blood tests in week or two. I'm working...

  • Help!

    Nov. 14, 2018, 10:22 p.m.

    Your message made me think of four things that might help. First, since your GD started after your pregnancy...

  • Relatively new on levothyroxine and lots of questions

    Nov. 5, 2018, 10:36 p.m.

    I just got insurance approval to try Botox for my migraines. Appointment is Thursday. Crossing my fingers.

  • Relatively new on levothyroxine and lots of questions

    Oct. 31, 2018, 3:58 p.m.

    I hear you on the migraines. Sometimes I think it is my IBS-D and then I get the headache and realize it was...

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