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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • TED or Glaucoma

    Aug. 16, 2019, 5:44 p.m.

    Your intraocular pressures can rise due to increased size of eye muscles from TED. As muscles thicken, they...

  • TED or Glaucoma

    Aug. 16, 2019, 4:48 p.m.

    Hello - The distinction between TED & glaucoma can be tricky…a second opinion might be helpful if...

  • Cold medicine and Graves

    Aug. 16, 2019, 4:42 p.m.

    Hello - I think the bigger concern is if you are hypER and take a cold med that could ramp up your heart...

  • TED or Glaucoma

    Aug. 16, 2019, 4:06 a.m.

    After being in remission for quite a few years by eating clean and walking, I went back to my old ways of...

  • Cold medicine and Graves

    Aug. 15, 2019, 7:51 p.m.

    I've just developed a cold and went to the store last night to buy OTC cold medicine. I bought a box...

  • Please Post Regarding Evidence-Based Treatments Only

    Aug. 12, 2019, 10:44 a.m.

    Removed a post that contained claims about an unproven “treatment” protocol. Please review the...

  • New site oneGRAVESvoice.com

    Aug. 3, 2019, 9:57 a.m.

    Thanks Kimberly! Yes, I heard about it from the GDATF monthly e-newsletter.

  • New site oneGRAVESvoice.com

    Aug. 2, 2019, 4:13 p.m.

    Hello - That is a separate platform that was designed as a partnership between the GDATF, Horizon...

  • High TSH and High FT4

    Aug. 1, 2019, 1:27 p.m.

    I am 5 years post TT and I have not had free Ts tested for several years. I could have high FT4 and a high...

  • High TSH and High FT4

    Aug. 1, 2019, 10:19 a.m.

    Hello and welcome - hopefully, there are other community members here who can share personal experiences on...

  • New site oneGRAVESvoice.com

    Aug. 1, 2019, 10:15 a.m.

    I recently got an email recommending onegravesvoice.com . Is that intended to replace this forum?

  • RAI, my experience

    Aug. 1, 2019, 10:10 a.m.

    Hello and welcome…and thanks for sharing your journey here!

  • High TSH and High FT4

    July 30, 2019, 4:50 p.m.

    I am a 46 year old female diagnosed with Graves in 2009. After 2 failed attempts of RAI, I had a total...

  • Graves Disease and hair loss

    July 30, 2019, 10:30 a.m.

    Hi and welcome! While I don't have experience on methimazole - I do have experience on multiple levothyroxine...

  • RAI, my experience

    July 29, 2019, 11:04 a.m.

    I made the difficult decision to proceed with RAI. I was formally diagnosed with Graves in 2012 when I...

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