My almost 6 yr old boy was just diagnosed with Graves and Graves opthalmology complications. He's had it for at least 6 months (eyes have been bulging since then), but neither our PCP or urology doctors caught it until end of November (my child also has kidney disease, found at birth). The one who caught it? A substitute PCP because our PCP wasn't available for a visit. Thank god for the sub.
There is so little info about HYPERthyroid and Graves for kids. There's so much info for HYPO and diabetes… why hadn't I heard of Graves' disease before???
I'm looking for support and haven't found much in my area, Seattle. Hoping someone here can help. We're at Seattle Children's, and I am thankful for that, but I still haven't found any emotional support for it.
This is a lifelong disease, and he's only 6. Rapid heart rate, extreme muscle fatigue, sensitive to light, anxiety and irritability (quick to tantrums), and we've got his hydronephrosis (kidney disease) to handle as well. …..
I hate this disease for my kid. I hate this disease for any body. I hate this disease.
He is on methamazole 3x a day and antenolol 1x a day, plus eyedrops and eye lubricating cream at night.
Lifelong. and we've just started. And i'm stressed, though trying not to show it to my boy.
Son diagnosed November 2017, though his eyes have been bulging since June 2017.
Son was diagnosed at age 5, almost 6.
Hyper/Graves with Graves' eyes/TED