Hi Virginia -
Thanks for checking back in on this thread - we seem to have been on a similar ATD pathway. Over the past several months, Doctor and I have slowly been reducing my doses of Tapazole (from 30mg weekly a year ago, to 12.5mg weekly, starting today). I have found that small dose reductions, and allowing several weeks between labs for the dose change to “settle”, has been working best for me. What has been happening is that with each reduction, my TSH first goes down, and then creeps back up on my second blood draw after the reduction. So, we reduce again. Hoping to be Tapazole-free at some point, since I slip a little to the hypo side of things every other draw (still within normal ranges, though). Between slipping a little hypo “for me”, and a known side effect of Tapazole, I hope to get to ditch the joint/muscle pain - my only “complaint” these days
My doctor predicts (and he sees this often in his practice) that I will likely be taken off Tapazole eventually and monitored; then he thinks I'll likely slip hypo and go on Synthroid - and another search for a Goldilocks dose will begin
A step at a time, with lots of patience in between - and as a wise facilitator here puts it - “Don't give up”! Thanks again for your post, and all the best to you, too!