It hasn't been easy, and my journey surely hasn't been short, but I too have wrestled this Graves thing to the ground - at last. As many of my Forum Friends know, I was diagnosed in March 2013, several stressful months after three very difficult life events happened, and all at the same time. During this devastating time, I struggled with Graves, and I believe my struggle was made harder and took longer to overcome, because of all that was happening. I mention this, so that anyone who has chosen ATD as treatment will not be discouraged by the length of time it has taken me to post my success story here. Many (most?) who choose this route recover much faster, as you will read in other posts under this thread - one ATD patient was running half-marathons again, after just a year.
Condensing my journey, with caring and supportive doctors, I spent three years on Tapazole trying to find my “just right” dose. Being sensitive to dose changes, I would feel pretty miserable after each one for the better part of a month, and even then, my most aggravating symptoms (that feeling of disconnection, the blues, plus musclo-skeletal/proximal muscle pain and stiffness) just wouldn't let up. Sometime during the third year of chasing my Goldilocks Dose, we noticed that I seemed to be slipping hypO, which then meant a gradual process of tapering off Tapazole. (This may not happen happen to many ATD'ers, just not sure…) Once off Tapazole, and for about six months after, I was medication-free, in hopes that my thyroid function would keep me in normal ranges. But I had crossed over into hypO territory for sure, and in July last year, we began a low dose of my new best friend Synthroid. I say “new best friend”, because after one year of trying various doses, we have found my own just-right levels. And I feel fantastic - cheerful, happy-go-lucky again, and those pesky musclo-skeletal/proximal muscle pain and stiffness? they're gone!
Yes, it was a long, long haul on the ATD trail for me, and yes, it took all the patience I could muster along the way. But, “I'm there” at last! You will get there, too, with the help of your your own doctor - this disease does require immediate medical attention in the beginning, and careful monitoring after that - a lot of effort, but we get there.
I'll close with a heartfelt Thank You to Kimberly and to so many others here, for all their knowledge, encouragement and support, as well as with my wish for everyone, that no matter which treatment path you choose, you will find your very own sweet spot very soon, too - and lasting peace, health and happiness after that. It does happen.
- Forum Friend flora
… there was a star danced, and under that was I born.
Edited flora (Oct. 18, 2017 05:52:18)