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#1 April 4, 2020 20:23:40

SamanthaHuneycutt
Registered: 2020-04-04
Posts: 1
Profile  

Graves Disease and Radioactive Iodine Treatment

Hello all!
My name is Samantha Huneycutt and I am currently 21 years old and a college student at East Carolina University studying Public Health and Sociology! I was diagnosed with Graves Disease at the ripe age of 15, after waking up one morning with a heart rate of 163! It was particularly hard because I was a track and field runner and hurdler, so workouts every day would skyrocket my heart rate into the lower 200's. I was on methimazole for a number of years, and because it slowed my metabolism but I was still consuming the same amount of food as I was when I had a fast metabolism, I gained close to 40 pounds in less than 2 months. I kept fluctuating in and out of remission until the summer of 2018. I received the radioactive iodine treatment and have been on levothyroxine ever since! In that time I raised over $500 for the GDATF for a portion of my senior high school project. I'm currently on 175 MCG (.175 MG) of my medication, and it's up so high because I am awful at remembering to take it so my lab results would always come out low. My family has a history of hypothyroidism, but it's hard to pinpoint if mine was caused by genetics because mine was originally hyper and also because the area I live in, Mooresville North Carolina has clusters of thyroid disease and thyroid cancer. Just thought I'd share my story because I was particularly young to get diagnosed with a thyroid disease. I look forward to reading everyone's comments!

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#2 April 6, 2020 17:49:06

Kimberly
Online Facilitator
Registered: 2008-10-14
Posts: 4182
Profile  

Graves Disease and Radioactive Iodine Treatment

Hello - I remember when you were doing your senior project…time flies! Thanks so much for your support and for sharing your story. Hope that you are doing OK with school with all the closures.

Being consistent with meds is so key. I got into a routine where I put the meds out and pour a glass of water before I go to bed at night. Then I see the water & that's a reminder to take the meds. A phone reminder might also be helpful.

Take care!


Kimberly
GDATF Forum Facilitator

…through nature's inflexible grace, I'm learning to live…
– Dream Theater

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#3 July 27, 2020 19:34:45

Big_goit
Registered: 2020-07-11
Posts: 8
Profile  

Graves Disease and Radioactive Iodine Treatment

Hey! I'm a 17 year old from NC who was diagnosed with GD least year at age 16 lol so we have a couple things in common! I got a “total” thyroidectomy in August 2019 but a large portion of my thyroid grew back in less than 6 months so I'm now in the process of scheduling radioactive iodine treatment for the near future.

It's awesome that you did your senior project on thyroid related stuff! Would you care to share more about your experience with radioactive iodine? How did you feel in the days after treatment? Good luck at East Carolina University!

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#4 July 28, 2020 19:08:22

Reah
Registered: 2020-07-28
Posts: 1
Profile  

Graves Disease and Radioactive Iodine Treatment

Hi, I am Reah from the Philippines.
Glad to have discovered this website today and I thought I'd register and introduce myself.
I am 41, diagnosed with hyperthyroidism seven years ago and have been in Methimazole ever since. I was only told I have Graves' this year. I will only be having my RAI tomorrow and I look forward on how this will change my life, hopefully for the better.
Glad to read stories from other people.
Take care, everyone.

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#5 July 29, 2020 14:08:15

Kimberly
Online Facilitator
Registered: 2008-10-14
Posts: 4182
Profile  

Graves Disease and Radioactive Iodine Treatment

Welcome, Reah! You might also check out our Facebook group (you can search for GDATF) or our social wall at oneGRAVESvoice.com if you'd like to hear from other patients, as this forum is a little more quiet than the other two.

Hope all goes well!


Kimberly
GDATF Forum Facilitator

…through nature's inflexible grace, I'm learning to live…
– Dream Theater

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