I've spent the last week reading so many incredibly helpful posts on this site. Thank you all for your contributions…and Kimberly, you are a true angel.
Anyway, I'm a 65 year old woman who was diagnosed 18 months ago with Graves Disease. I've been on 2.5 mg of methimazole 6 days a week for the full 18 months. It's worked great as I've had no side effects from either the methimazole or the Graves (aside from slight TED) and I honestly feel perfectly fine (aside from looking sickly thin from the 20 pounds i lost).
My endo, who is with an excellent hospital in NYC (NYU Langone) and has been extremely well reviewed online is recommending RAI or TT surgery. He said that after 18 months of methimazole, there is almost no chance for remission. Is this true?
I recently switched to him as my old endo was a bit far and I wanted someone more convenient. She, however, planned on keeping me on methimazole long term. She said I will remain on 2.5 mg until my TSI antibodies go down, which could be 2, 3 even 4 years. (my latest TSI is 552. It was 596 in September 2019 - normal range is <140).
I'm so confused. I am concerned with RAI as my mother had breast cancer and, of course would like to avoid surgery if possible.
Has anyone gone into remission after being on metimazole long term?
Also, can you possibly direct me to links (or a good ‘search term’ that i can use) discussing long term metimazole use and remission?