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Recent Forum Posts

  • 20 years post RAI, suddenly hyper on same dose Syn

    April 8, 2021, 12:26 p.m.

    Hello and welcome - as you noted, patients do often need tweaks in dosage as they age. Another thought is...

  • Graves Disease and Radioactive Iodine Treatment

    April 7, 2021, 1:36 p.m.

    That's Great Samantha. Good Luck with school!

  • New TED diagnosis

    April 7, 2021, 1:22 p.m.

    Are they treating your thyroid? TED doesn't just happen by itself. It's usually related to issues such as...

  • 20 years post RAI, suddenly hyper on same dose Syn

    April 7, 2021, 1:18 p.m.

    Graves diagnosis 1997, age 37, tx RAI. After adjustment period, Synthroid level stable with brief periods of...

  • New TED diagnosis

    April 1, 2021, 10:48 a.m.

    Just a note that this is very individual. The GDATF hosted a recent webinar on long-term use of antithyroid...

  • New TED diagnosis

    March 31, 2021, 1:43 p.m.

    You still have a thyroid which could at any time randomly chug out more hormone, or less, overriding the...

  • Graves and glucose

    March 31, 2021, 2:20 a.m.

    Hi Kimberly, When I was first diagnosed with hyperthyroidism my fasting glucose was a bit on the high side...

  • New TED diagnosis

    March 30, 2021, 8:28 p.m.

    Thank you so much for your response. I have had a recent CT scan of the orbits which found increased orbital...

  • Graves and glucose

    March 23, 2021, 3:20 p.m.

    Hello and welcome - Graves' disease (and all that comes with it) is definitely overwhelming. The key for now...

  • TED not getting better

    March 21, 2021, 9:36 a.m.

    Thank you all for the advice and kind words. A doctor did mention Tepezza to me, however they didn't think I...

  • TED not getting better

    March 21, 2021, 3:48 a.m.

    Tepezza, which is given as a series of infusions, does work. I have a friend whose TED course has been very...

  • Graves and glucose

    March 20, 2021, 9:40 a.m.

    Hi everyone, I’m new here. To give you some quick background - I was diagnosed with Graves following 2...

  • New TED diagnosis

    March 20, 2021, 4:03 a.m.

    You will need to be followed by an oculoplastic surgeon familiar with Graves. At each visit, pressures should...

  • New TED diagnosis

    March 19, 2021, 7:34 p.m.

    Hello and welcome - hopefully, you will get some responses here, but you might also check out our Facebook...

  • New TED diagnosis

    March 17, 2021, 1:45 p.m.

    Recently diagnosed with early stages of TED. Doctor advised Selenium, low sodium diet, sleeping head...

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